Lipedema is a painful, genetic, and progressive connective tissue disorder that damages the lymphatic system, leading to chronic inflammation and a buildup of non-metabolic tissue that resembles scar tissue more than fat. This condition alters the shape and size of the body, leading to mobility issues and an increased risk of sepsis.

 Although Lipedema affects 1 in 9 women and people assigned female at birth, it remains largely unrecognized by both doctors and patients, resulting in widespread misdiagnosis. I wasn’t diagnosed until I was 38 years old, despite having symptoms as early as age 11.

After a year-long battle to obtain a proper diagnosis, I discovered a passion for sharing my story. Given the prevalence of Lipedema, it’s clear that many others have this disorder but are unaware of its existence, and many doctors still lack the training and education needed to identify it in patients.

Through sharing my Lipedema journey on social media, I have reached over 10 million people. Many have reached out to tell me they were able to use my video to help their doctors recognize and diagnose their condition, while others are now questioning if the symptoms they’ve experienced could be Lipedema. Patient storytelling has proven to be one of the most effective ways to educate others on what might be affecting their own health.

I speak and advocate from an intersectional, queer, and trans-inclusive perspective. As a speaker and Lipedema awareness advocate, I use storytelling to raise awareness and empower others, believing strongly in the power of patient-led self-care communities.

I found the passion to tell my story in how long it took me to be diagnosed. Lipedema rates affirm that many more people out there have this disorder.  At least 1 in 9 women and people assigned ‘female’ at birth have Lipedema, but most do not know it. 

 I found  the courage to share my story in my own natal chart’s north node which sits in the 10th house (the house of our careers) in Leo. What I knew of the Lion of our zodiac is that it was time I center myself, my story, my voice, and my image to inspire others to advocate for themselves. 

I speak and work from an intersectional  and queer and trans-inclusive perspective.  I use storytelling in my work as a speaker, Lipedema awareness advocate, and natal chart coach and I believe in the power of patient-lead self care communities.