Navigating Lipedema is one of the most difficult journey’s I’ve taken on in my lifetime. Gross under-diagnosis and fat bias support the institutional barriers to treatment. I’m determined to do the impossible and I refuse to compromise self-love, self-care, and support in exchange for it.

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Life in a Lipedema Body MEET BRENA JEAN

Hi,
I'm Brena Jean.

I was 38 years old when I learned that I have Lipedema, a rarely-diagnosed fat disorder. The diagnosis came with an awareness that I wasn’t alone and that I’d been right about my body all along. There isn’t a cure for Lipedema but now that I know I have it, I can take better care of myself. I’m pursuing medically-necessary Lipedema Liposuction, a common way to reduce the pain associated with Lipedema. I’m facing an uphill battle against Medical Insurance providers and if I win, nearly full-body reconstruction. I’ll share everything I get on this journey with you. 

    Watch My Lipedema

    Hi, I'm Brena Jean.

    I was 38 years old when I learned that I have Lipedema, a rarely-diagnosed fat disorder. The diagnosis came with an awareness that I wasn’t alone and that I’d been right about my body all along. There isn’t a cure for Lipedema but now that I know I have it, I can take better care of myself. I’m pursuing medically-necessary Lipedema Liposuction, a common way to reduce the pain associated with Lipedema. I’m facing an uphill battle against Medical Insurance providers and if I win, nearly full-body reconstruction. I’ll share everything I get on this journey with you. 

      What Stage

      of the Lipedema

       

      Are You In?

      DISCOVERY

      I discovered Lipedema by accident. I found a video featuring Dr. Amron on a medical talk show helping a woman with large legs. Later in my journey, Dr. Amron diagnosed me with Lipedema. But not before I spent months researching and wondering… do I have it?

      DIAGNOSIS

      Getting diagnosed can be challenging because little is known about Lipedema and fat-bias impacts our access to the best medical care. Find out how others learned they have this disorder in our Lipedema stories from all corners of the Lipedema community.

      ACCEPTANCE

      Just like we learned the culprit of our physical pain, I had to learn the truth about my emotional suffering. I was turning my anger and sadness in on myself but my beliefs about my body and abilities were the sources of my pain. Join me in unraveling the social beliefs and interactions from our beliefs about ourselves. Find the inspiration to live your best life right now as you are.

      DISCOVERY

      I discovered Lipedema by accident. I found a video featuring Dr. Amron on a medical talk show helping a woman with large legs. Later in my journey, Dr. Amron diagnosed me with Lipedema. But not before I spent months researching and wondering… do I have it?

      DIAGNOSIS

      Getting diagnosed can be challenging because little is known about Lipedema and fat-bias impacts our access to the best medical care. Find out how others learned they have this disorder in our Lipedema stories from all corners of the Lipedema community.

      ACCEPTANCE

      Just like we learned the culprit of our physical pain, I had to learn the truth about my emotional suffering. I was turning my anger and sadness in on myself but my beliefs about my body and abilities were the sources of my pain. Join me in unraveling the social beliefs and interactions from our beliefs about ourselves. Find the inspiration to live your best life right now as you are.

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